Resources for families
Information, support, and connections for the road ahead.
Practical resources for families navigating Duchenne muscular dystrophy, changing mobility needs, accessibility barriers, and the search for meaningful support.
Mobility & Accessibility
Guidance on mobility aids, accessibility, physical therapy, and environmental changes for people living with Duchenne.
Family Resource Guide
Family services, physical therapy resources, DME guidance, newly diagnosed support, education, and caregiver tools.
Family Resources & Giving Fund
Programs and resources including accessible-vehicle, equipment, and emergency assistance for qualifying Duchenne families.
Organizations are listed as independent family resources. Inclusion does not imply a formal partnership or endorsement. Eligibility, services, and availability are determined by each organization.
How we organize resources
Browse practical information by the type of support your family is looking for.
DMD Family & Community Support
Trusted Duchenne organizations, educational resources, caregiver support, and community connections.
Mobility & Accessibility
Information that can help children participate more fully at home, school, while traveling, and in the community.
Grants & Practical Assistance
Charitable grants, nonprofit programs, public benefits, fundraising resources, and community support.
Adventure & Inclusion
Accessible parks, travel, camps, outings, sporting events, and community activities.
Identifying the Barrier
Start with what is difficult today, how it affects participation, and what change would make a meaningful difference.
Privacy & Safe Sharing
Ask for help without unnecessarily sharing sensitive information. Use approved secure processes for private records.